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65 Red Roses:: Cystic Fibrosis

May 16, 2014 By Channing 1 Comment

Lilley Boys

These boys. These 2 beautiful boys are 2 of the most outgoing, loving, rambunctious, fun, sweet, smart, athletic, special boys you will ever meet. These 2 boys are sons, brothers, grandsons, nephews, cousins and friends.

Caden and Evan are the precious sons of my cousin Nathan and his wife Melody and they bring so much joy to our family.

And, they have Cystic Fibrosis or 65 Red Roses as so many children with CF call it.

Cystic Fibrosis (CF) is a life-threatening genetic disease that affects the lungs and digestive system. Around 30,000 individuals in the United States and 70,000 world wide have Cystic Fibrosis.

With CF cells are folded, causing all of the mucous in the body to be thick and have an adverse, life-threatening affect on all organs. Since 1950 many strides have been made in the treatment and understanding of Cystic Fibrosis we are so grateful for this progress with improvements in the length and quality of life for those with CF.

If you were to meet Caden and Evan you would never know that they suffer from a genetic disease. These boys live full lives but without continued research we will not have a cure.

The month of May is Cystic Fibrosis Awareness month. Our goal is to inform others about this life threatening disease that affects so many around the globe.

You can learn more about Cystic Fibrosis here. Learn more, get involved, help us find a cure!

Lilley Fam

 

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    October 13, 2014 at 8:04 pm

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    65 Red Roses:: Cystic Fibrosis – Moms Without Answers

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Hi, friends! I’m Channing. I am mom to 3 amazing girls and wife to my fire fighting hubby, Eric. I loving sharing all things mom life related – recipes, DIY’s, real mom talk, crafts and more! 

Insta-Moms: @momswoa

Instagram post 17951785348338518 Happy 4th from these little cuties. It looks A LOT different this year but we are still having fun.
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#happy4thofjuly #happyfourth #fourthofjuly #redwhiteandblue #momblog #houstonmomblogger #momofgirls
Instagram post 17856710153004179 #blackouttuesday
Instagram post 17864637601827512 This is what happens on day number 3,568,743 of quarantine: ice cream sundaes for DINNER. We have been spending endless time together and decided it was time to start a new family tradition, so we picked up the new DIY Sundae Kit from @baskinrobbins! The kit comes with 2 pre-packed quarts of ice cream, 3 toppings, an entire can of whipped cream and cherries! Ice
cream for dinner will now be a weekly staple. The kids are definitely not complaining! It’s a fun day with a Sundae! 
Comment below and tell me your favorite Baskin Robbins flavor!

#QuarantineCreations #IceCreamforDinner #FamilyTraditions #ad
Instagram post 17855065096958471 Some of my #DisneyMagicMoments have been with some special moms in my life! So, I’m playing along and sharing some of these moments with you.

I have spent time with old friends and new and the magic is always there. 
If you scroll back far enough, you will see my first Disney experience and the moment I fell in love with Disney with my own mom! 
I would love for you to play along and share your favorite Disney moments with the moms in your life! Don’t forget to use hashtag #disneymagicmoments! I tag @pixiemousemichelle, @fivefortheroadblog and @mrsblinks! 
Happy Mother’s Day! 😘😘
Instagram post 17873430769680209 Happy Cinco de Mayo! 🌮 What is your favorite Mexican dish?

I could eat Mexican for every meal of everyday! If your looking for the perfect recipes to make for dinner, I’ve got you covered. 
Head on over the the blog for all of my favorite dishes! These enchiladas NEVER disappoint! I promise you will LOVE all of these recipes! 🎉
Instagram post 17885629336528535 May the 4th be with you! We cannot wait for the day that we get to be back at Star Wars Galaxies Edge. Batuu, we miss you! #maytheforcebewithyou #may4thbewithyou #disneycreators #batuu #bluemilk #wemissdisney
Instagram post 17850899390014309 Disney is challenging us to share our first pictures with characters! I had to join in the fun and it was the best trip down memory lane. Disney has been threaded throughout my entire life. I pulled a few of my most favorite memories over the years. From partying in the streets during the most epic dance party and meeting our most favorite princesses to me being a kid at Disney myself. Oh, I also had to add a picture of Cinderella’s Castle. She really is the most beautiful cast member of them all! 
@waltdisneyworld we miss you more and more each day. You’ve brought us joy beyond words and we cannot wait for the day when we get to walk down Main Street USA again! 
Ok, now it’s your turn. Find your old photos of your favorite Disney characters and share the magic. Also, don’t forget to tag me. I want to see all your memories too! 
@pixiemousemichelle @ericaligenza and @prettyprovidenceblog it’s time to share yours!#disneymagicmoments #myfirstdisneycharacter #disneycreators #disneyfamily #disneykuds #disneyworld
Instagram post 17904777073435611 EASY EASTER SUGAR COOKIE BARS! [AD] With Easter looking a little different this year, I teamed up with my friends at @hersheys to create a fun Easter treat using items you probably have in your pantry!
These Easter Sugar Cookie Bars are so easy to make. Store bought sugar cookie mix and cute colorful icing is the perfect foundation for @cadburyusa eggs and @reeses eggs. 
Looking for more treat ideas? Check out the fun recipes at https://Hershey’s.com/kitchen/en_us/home.html

Comment below and tell me your favorite Easter recipes! #cadburyusa #reeses #eastertreats #springdessert
Instagram post 18019712191263346 I’m joining my friend @andhattiemakesthree for #happymondaymemory to share some joy and fun around here!
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Let’s take it back to the #happiestplaceonearth and our time in Star Wars Galaxy’s Edge! Y’all, I don’t even have words for how amazing it is. And #riseoftheresistance is everything! Check out our video to see for yourself. We miss you @waltdisneyworld and can’t wait to make more memories soon!
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Now it’s your turn! Share your favorite memory and let’s spread some joy! #evereveambassador #disneycreators #starwars #disneyhollywoodstudios #stayhome
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